Nurses and midwives play important roles in providing and coordinating the care of individuals belonging to key populations and assisting them to navigate services. A holistic initial assessment can identify issues that affect an individual’s care. A multidisciplinary approach is important to support the most vulnerable to remain engaged in care.
At an individual level, assessment includes the following:
- Educational needs regarding HIV treatment or prevention
- Impact of the diagnosis or treatment on the life of the individual – including pregnancy, relationship issues
- Sustainability of current accommodation settings and safety
- Sustainability of income and access to financial assistance
- Mental health and emotional needs
- Access to tailored HIV services such as medical and nurse practitioners who are qualified to prescribe antiretroviral therapies and to treat PLHIV (in Australia, known as S100 prescribers)
- Disclosure of HIV status and its impact.
At an interpersonal level, assessment includes identifying:
- Family and community connections
- Social isolation or social exclusion
- Access to peer support.
Strategies and systems that promote engagement include:
- No cost comprehensive and multidisciplinary services (64).
- Non-discriminatory policies and procedures
- Explicit commitment to confidentiality and support around HIV disclosure
- Regular staff education including reflection on attitudes, and consciousness-raising.
- Support for assertive outreach approaches.
- Professional (nursing and midwifery) involvement in community development interventions and projects
- Continuity of care by skilled and trusted providers (65).
- Integrated clinical and community-based care (such as through liaison and care coordination roles, partnerships with community-based AIDS organisations).
Strategies found to be helpful in the international context include:
- Strengths-based case management – clients are encouraged to identify their own abilities and skills to access resources and problem-solve. This provides strong evidence for retention in HIV care (66).
- Peer navigation – including peers as part of a healthcare team (64). This includes the use of First Nations liaison workers (68, 69).
- Reducing structural- and system-level barriers (64).
- Using community-based organisations as a setting for engaging persons with HIV
- Involving ‘significant others’ in retention in HIV care interventions
- ‘Differentiated service delivery’ – fewer clinic visits, ‘one-stop-shop’ clinics and community dispensing of antiretrovirals (70).
International research and guidelines suggest the following practices can improve linkage and retention in care:
- Routine viral load testing 6 months and 12 months after starting on treatment, and every 12 months thereafter, if stable on treatment (71)
- Less frequent clinic visits for those on stable ART – for example, every 3-6 months or even yearly.
- ART can be distributed by trained, supervised lay providers.
- Programs should include community support interventions and intensive outreach (71).
- Adolescent-friendly services (73, 74).